Health-related quality of life in patients with type 2 diabetes compared to their spouses
Sub-study of the Asker and Baerum Cardiovascular Diabetes Study
DOI:
https://doi.org/10.1002/edn.35Keywords:
Type 2 diabetes mellitus, health-related quality of life, education, aspects of diabetes mellitusAbstract
AbstractBackground: Type 2 diabetes mellitus is a chronic disease that may have a severe impact on the quality of life of patients themselves and their families. For patients living in a partnership, the involvement of and relations with spouses might be of importance.
Aims: This study aims to investigate self-assessed health-related quality of life (HRQL) in spouses and people with type 2 diabetes and describe spouses’ need for knowledge about type 2 diabetes.
Methods: Caucasian (n=75) people with type 2 diabetes (age 60±9 years, female/male16/59, HbA1c 7.5±1.6%) and their spouses (age 59±11 years, living in heterosexual relationship) performed self-assessment using SF-36 Norwegian version 1.2. Spouses were also asked about their need for education and information about type 2 diabetes.
Results: Three SF-36 health dimensions (general health perceptions, mental health, social functioning) were significantly reduced among people with type 2 diabetes, as compared to spouses and normative data (p<0.001), while the spouses’ HRQL was similar to the normative data. The majority (57%) of spouses wanted more information about the disease. Only a minority (31%) of the spouses felt supported in the provision of diabetes information by the healthcare providers system and few had received information from professionals (23%).
Conclusions: People with type 2 diabetes have reduced HRQL as compared with their spouses; but living in such a partnership does not reduce the SF-36 scores of the spouses, compared with the general population. As the majority of spouses wanted more information about type 2 diabetes and did not feel supported by the healthcare system, strategies that aim to improve their educational levels might be helpful for the treatment of people with type 2 diabetes living in a partnership.
Downloads
References
Mokdad AH, Ford ES, Bowman BA, et al. Diabetes trends in the U.S: 1990-1998. Diabetes Care 2000; 23: 1278–1283.
Wild S, Roglic G, Green A, et al. Global prevalence of diabetes: esti-mates for the year 2000 and projec-tions for 2030. Diabetes Care 2004; 27: 1047–1053.
Yusuf S, Hawken S, Ounpuu S, et aL. Effect of potentially modifiable risk factors associated with myocardial infarction in 52 countries (the INTERHEART study): case-control study. Lancet 2004; 364: 937–952.
The ACS/ADA/AHA Collaborative Writing Committee. Preventing Cancer, Cardiovascular Disease, and Diabetes: A Common Agenda for the American Cancer Society, the American Diabetes Association, and the American Heart Association. Circulation 2004; 109: 3244–3255.
Rubin RR, Peyrot M. Psychosocial problems and interventions in dia-betes. A review of the literature. Diabetes Care 1992; 15: 1640–1657.
Wandell PE. Quality of life of Patients with diabetes mellitus. An overview of research in primary health care in the Nordic countries. Scand J Prim Health Care 2005; 23: 68–74.
Nouwen A, Gingras J, Talbot F, et aL. The development of an empirical psychosocial taxonomy for patients with diabetes. Health Psychol 1997; 16: 263–271.
Faulkner MS, Clark FS. Quality of life for parents of children and ado-lescents with type 1 diabetes. Diabetes Educ 1998; 24: 721–727.
Fisher L, Chesla CA, Bartz RJ, et al. The family and type 2 diabetes: a framework for intervention. Diabetes Educ 1998; 24: 599–607.
Cardenas L, Vallbona C, Baker S, et aL. Adult onset diabetes mellitus: glycemic control and family func-tion. Am J Med Sci 1987; 293: 28–33.
Garay-Sevilla ME, Nava LE, Malacara JM, et al. Adherence to treatment and social support in patients with non-insulin depend-ent diabetes mellitus. J Diabetes Complications 1995; 9: 81–86.
Primomo J, Yates BC, Woods NE Social support for women during chronic ill-ness: the relationship among sources and types to adjustment. Res Nurs Health 1990; 13: 153–161.
Schwartz LS, Coulson LR, Toovy D, et aL. A biopsychosocial treatment approach to the management of diabetes mellitus. Gen Hosp Psychiatry 1991; 13: 19–26.
Trief PM, Grant W, Elbert K, et al. Family environment, glycemic con-trol, and the psychosocial adapta-tion of adults with diabetes. Diabetes Care 1998; 21: 241–245.
Coyne JC, Smith DA. Couples coping with a myocardial infarction: a con-textual perspective on wives' distress. J Pers Soc Psychol1991; 61: 404–412.
Giese-Davis J, Hermanson K, Koopman C, et aL Quality of couples' relationship and adjustment to metastatic breast cancer. J Fam Psychol 2000; 14: 251–266.
Gilden JL, Hendryx M, Casia C, et al. The effectiveness of diabetes education programs for older patients and their spouses. J Am Geriatr Soc 1989; 37: 1023–1030.
Trief PM, Wade MJ, Britton KD, et al. A Prospective Analysis of Marital Relationship Factors and Quality of Life in Diabetes. Diabetes Care 2002; 25: 1154–1158.
World Health Organization. Definition, diagnosis, and classification of diabetes mellitus and its complications: report of a WHO consultation. Geneva: World Health Organization, 1999.
Ware JE-Jr, Sherbourne CD. The MOS 36-item short-form health sur-vey (SF-36). I. Conceptual frame-work and item selection. Med Care 1992; 30: 473–483.
Aaronson NK, Acquadro C, Alonso J, et aL. International Quality of Life Assessment (IQOLA) Project. Qual Life Res 1992; 1:349–351.
Keller SD, Ware JE-Jr, Bender PM, et al. Use of structural equation mod-elling to test the construct validity of the SF-36 Health Survey in ten countries: results from the IQOLA Project. International Quality of Life Assessment. J Clin Epidemiol 1998; 51: 1179–1188.
Loge JH, Kaasa S, Hjermstad MJ, et al. Translation and performance of the Norwegian SF-36 Health Survey in patients with rheumatoid arthri-tis. Data quality, scaling assump-tions, reliability, and construct validity. J Clin Epidemiol 1998; 51: 1069–1076.
Ware JE, Snow KK, Kosinski M, et al. SF-36 Health Survey Manual and Interpretation Guide. Boston, MA: The Health Institute, 1993.
Loge JH, Kaasa S. Short form 36 (SF-36) health survey: normative data from the general Norwegian population. Scand J Soc Med 1998; 26: 250–258.
Goldney RD, Phillips PJ, Fisher LJ, et al. Diabetes, depression, and qual-ity of life: a population study. Diabetes Care 2004; 27: 1066–1070.
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2006 Copyright © 2006 FEND
This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.