Everyday life in a family of an adult person with Type 1 diabetes

Authors

  • Tuula-Maria Rintala

DOI:

https://doi.org/10.1080/20573316.2017.1401201

Keywords:

Diabetes mellitus, Adult, Family, Substantive theory, Family nursing

Abstract

The purpose of this study was to develop a substantive theory of everyday life in a family with an adult with Type 1 diabetes. The data consist of interviews conducted with people with diabetes (n = 19) and their family members (n = 19). Based on the results, diabetes is visible or invisible, present in the everyday life. Life must be carefully planned and diabetes must be taken into consideration in everything. A person with diabetes tries to keep the balance with his/her self-management. Keeping the balance with self-management is demanding to a person with diabetes and the family members’ support is needed. Managing with hypoglycaemia touches the everyday life of the whole family. The family lives with changing feelings. The family becomes acquainted with diabetes little by little and the process promotes the family's participation in the self-management. The family's contribution to self-management varies. Based on the results, it is recommended to develop family-centered interventions.

Downloads

Download data is not yet available.

References

Rintala T-M, Jaatinen P, Paavilainen E, Åstedt-Kurki P. Interrelation between adult persons with diabetes and their family. A systematic review of the literature. J Fam Nurs. 2013;19(1):3–28. doi: 10.1177/1074840712471899

Ridge K, Treasure J, Forbes A, Thomas S, Ismail K. Themes elicited during motivational interviewing to improve glycaemic control in adults with Type 1 diabetes mellitus. Diabet Med. 2012;29:148–52. doi: 10.1111/j.1464-5491.2011.03384.x

August KJ, Rook KS, Parris Stephens MA, Franks MM. Are spouses of chronically ill partners burdened by exerting health-related social control? J Health Psychol. 2011;16:1109–19. doi: 10.1177/1359105311401670

Schokker MA, Links TP, Bouma J, Keers JC., Sanderman R, Wolffenbuttel BHR, et al. The role of overprotection by the partner in coping with diabetes: a moderated mediation model. Psychol Health. 2011;26:95–111. doi: 10.1080/08870440903342325

Corbin J, Strauss A. Basics of qualitative research techniques and procedures for developing grounded theory. 3rd ed. Los Angeles: Sage; 2008.

Wu FL, Juang JH, Yeh MC. The dilemma of diabetic patients living with hypoglycaemia. J Clin Nurs. 2011;20(15):2277–85. doi: 10.1111/j.1365-2702.2011.03725.x

Anderbro T, Amsberg S, Adamson U, Bolinder J, Lins PE, Wredling R, et al. Fear of hypoglycaemia in adults with Type 1 diabetes. Diabet Med. 2010;27:1151–8. doi: 10.1111/j.1464-5491.2010.03078.x

Shaban C, Fosbury JA, Cavan DA, Kerr D, Skinner TC. The relationship between generic and diabetes specific psychological factors and glycaemic control in adults with type 1 diabetes. Diabetes Res Clin Pract. 2009;85(3): e26–9. doi: 10.1016/j.diabres.2009.05.006

Robertson SM, Stanley MA, Cully JA, Naik AD. Positive emotional health and diabetes care: concepts, measurement, and clinical implications. Psychosomatics. 2012; 53(1): 1–12. doi: 10.1016/j.psym.2011.09.008

Snoek F, Malanda UL, de Wit M. Self-monitoring of blood glucose: psychological barriers and benefits. Eur Diabetes Nurs. 2008; 5(3): 112–5. doi: 10.1002/edn.122

Denham SA, Ware LJ, Raffle H, Leach K. Family inclusion in diabetes education: a nationwide survey of diabetes educators. Diabetes Educator. 2011;37:528–35. doi: 10.1177/0145721711411312

Torenholt R, Schwennesen N, Willaing I. Lost in translation – the role of family in interventions among adults with diabetes: a systematic review. Diabetic Med. 2014;31:15–23. doi: 10.1111/dme.12290

Laroche HH, Davis MM, Forman J, Palmisano G, Reisinger HS, Tannas C, et al. Children’s roles in parents’ diabetes self-management. Am J Prev Med. 2009;37:S251–61. doi: 10.1016/j.amepre.2009.08.003

Downloads

Published

2017-09-02

How to Cite

Rintala, T.-M. (2017). Everyday life in a family of an adult person with Type 1 diabetes. International Diabetes Nursing, 14(2), 72–75. https://doi.org/10.1080/20573316.2017.1401201

Issue

Section

Original Articles