Everyday life of a family with diabetes as described by adults with type 1 diabetes
DOI:
https://doi.org/10.1002/edn.234Keywords:
diabetes mellitus, adult person, family, everyday lifeAbstract
AbstractDiabetes mellitus is a common chronic disease. According to previous research, family has an important role in the management of diabetes among children and adolescents.
The aim of this study was to describe how adult people with type 1 diabetes experience everyday life in their families.
The Straussian grounded theory method was used to analyse data collected by interviewing 19 people with type 1 diabetes.
On the basis of the data, eight concepts describing different views on everyday living with diabetes were generated: managing hypoglycaemia; balancing self-management needs; performing daily routines in the family; living with changing feelings; diabetes being invisibly present; protecting the family’s well-being; the family members variously contributing to the self-management; and learning to live with diabetes in the family.
In conclusion, everyday life in families includes many different issues and family members are involved in the self-management of diabetes in many ways. In the interests of developing family-centred education and care, it is important to understand how adult people with type 1 diabetes experience everyday life within their families.
Downloads
References
Gherman A, et al. How are adherent people more likely to think? A meta-analysis of health beliefs and diabetes self-care. Diabetes Educ 2011;37(3):392–408.
King DK, et al. Self-efficacy, problem solving, and social-environmental support are associ-ated with diabetes self-management behav-iors. Diabetes Care 2010;33 (4) :751–3.
Nam S, et al. Barriers to diabetes manage-ment: Patient and provider factors. Diabetes Res Clin Pract 2011;93(1):1–9.
Sigurardóttir AK. Self-care in diabetes: Model of factors affecting self-care. J Gun Nurs 2005;14(3):301–14.
Fisher WA, et al. Understanding self-moni-toring of blood glucose among individuals with type 1 and type 2 diabetes: An Information-Motivation-Behavioral skills analysis. Diabetes Educ 2011;37(1):85–94.
van Dam HA, et al. Social support in dia-betes: A systematic review of controlled intervention studies. Patient Educ Couns 2005;59(1):1–12.
Minet L, et al. Mediating the effect of self-care management intervention in type 2 diabetes: A meta-analysis of 47 randomised controlled trials. Patient Educ Couns 2010;80(1):29–41.
Armour TA, et al. The effectiveness of family interventions in people with diabetes melli-tus: A systematic review. Diabet Med 2005;22(10):1295–305.
McBroom LA, Enriquez M. Review of family-centered interventions to enhance the health outcomes of children with type 1 dia-betes. Diabetes Educ 2009;35 (3) :428–38.
Chesla CA, et al. Family and disease man-agement in African-American patients with type 2 diabetes. Diabetes Care 2004;27(12): 2850–5.
Paddison C. Family support and conflict among adults with type 2 diabetes. Eur Diabetes Nurs 2010;7(1):29–33.
Stephens MA, et al. Spouses' use of social control to improve diabetic patients' dietary adherence. Fam Syst Health 2010;28(3): 199–208.
Rosland AM, et al. When is social support important? The association of family sup-port and professional support with specific diabetes self-management behaviors. J Gen Intern Med 2008;23(12):1992–9.
Rintala TM, et al. Interrelation between adult persons with diabetes and their family: a systematic review of the literature. J Fam Nurs 2013;19(1):3–28.
Carter-Edwards L, et al. 'They care but don't understand': Family support of African American women with type 2 diabetes. Diabetes Educ 2004;30 (3) :493–501.
Jorgensen HV, et al. The impact of severe hypoglycemia and impaired awareness of hypoglycemia on relatives of patients with type 1 diabetes. Diabetes Care 2003;26(4): 1106–9.
Corbin J, Strauss AL. Basics of qualitative research techniques and procedures for developing grounded theory, 3rd edn. Los Angeles: Sage, 2008.
Strauss A, Corbin J. Basics of qualitative research techniques and procedures for developing grounded theory, 2nd edn. Thousand Oaks, CA: Sage, 1998.
Charmaz, K. Constructing grounded theory: a practical guide through qualitative analysis. Thousand Oaks, CA: Sage, 2006.
Brazeau AR, et al. Barriers to physical activity among patients with type 1 diabetes. Diabetes Care 2008;31 (11):2108–9.
Wu F, et al. The dilemma of diabetic patients living with hypoglycaemia. J Clin Nurs 2011;20 (15) :2277–85.
Graveling AJ, Frier BM. Hypoglycaemia: An overview. Prim Care Diabetes 2009;3(3):131–9.
Brod M, et al. The impact of non-severe hypoglycemic events on work productivity and diabetes management. Value Health 2011;14(5):665–71.
Safford MM, et al. How much time do patients with diabetes spend on self-care? J Am Board Fam Pract 2005;18(4):262–70.
Shaban C, et al. The relationship between generic and diabetes specific psychological factors and glycaemic control in adults with type 1 diabetes. Diabetes Res Clin Pract 2009;85(3):e26–e29.
Robertson SM, et al. Positive emotional health and diabetes care: Concepts, meas-urement, and clinical implications. Psychosomatics 2012;53(1):1–12.
Snoek F, et al. Self-monitoring of blood glu-cose: Psychological barriers and benefits. Eur Diabetes Nurs 2008;5(3):112–5.
Stodberg R, et al. Lived experience of signif-icant others of persons with diabetes. J Clin Nurs 2007;16 (7B):215–22.
Laroche HH, et al. Children's roles in parents' diabetes self-management. Am J Prev Med 2009;37(6, Suppl 1):5251–5261.
Chiovitti RF, Piran N. Rigour and grounded theory research. J Adv Nurs 2003;44(4): 427–35.
Cooney A. Rigour and grounded theory. Nurse Res 2011;18(4):17–22.
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2013 Copyright © 2013 FEND.
This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.
